[A therapeutic educational program in Parkinson's disease: ETPARK].
Identifieur interne : 000807 ( Main/Exploration ); précédent : 000806; suivant : 000808[A therapeutic educational program in Parkinson's disease: ETPARK].
Auteurs : F. Ory Magne [France] ; C. Arcari [France] ; C. Canivet [France] ; M. Sarrail [France] ; M H Fabre [France] ; C. Mohara [France] ; C. Brefel Courbon [France]Source :
- Revue neurologique [ 0035-3787 ] ; 2014.
Descripteurs français
- Wicri :
- geographic : France.
English descriptors
- KwdEn :
- MESH :
Abstract
We developed a therapeutic educational program in Parkinson's disease (PD). The needs analysis for this program was performed through a survey involving 41 PD patients. This survey questionnaire was elaborated through the analysis of 395 patients' semi-directive interviews, performed in our specialized hospitalisation unit during explanation workshops between 2005 and 2007. We managed to design an educational program tailored to specificities of PD and according to the recommendations of the High Authority of Health in France (HAS). This program was based on individual sessions conducted by a nurse experienced in PD and trained in education. Collective workshops concerning specific themes such as physical therapy, communication, social supports, sleep disorders, stress management, therapies in PD could be proposed to volunteer patients and were performed by the nurse, a physiotherapist and a specialized practitioner. This program focused on skills structured in knowledge, expertise, and learning. It was intended for patients without any motor or cognitive severe impairment. We educated 231 patients between 2008 and 2012 individually and 113 in collective workshops. Patients had an interesting improvement in their self-esteem (6.2±1.4 before and 7.3±1.1 after one year of this educational program). This program has been validated by our regional medical agency and we performed a medico-economic study demonstrating a significant improvement in quality-of-life of educated patients without extra costs.
DOI: 10.1016/j.neurol.2013.08.007
PubMed: 24267951
Affiliations:
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Sarrail</name><affiliation wicri:level="3"><nlm:affiliation>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex</wicri:regionArea><placeName><region type="region" nuts="2">Occitanie (région administrative)</region><region type="old region" nuts="2">Midi-Pyrénées</region><settlement type="city">Toulouse</settlement></placeName></affiliation></author><author><name sortKey="Fabre, M H" sort="Fabre, M H" uniqKey="Fabre M" first="M H" last="Fabre">M H Fabre</name><affiliation wicri:level="3"><nlm:affiliation>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex</wicri:regionArea><placeName><region type="region" nuts="2">Occitanie (région administrative)</region><region type="old region" nuts="2">Midi-Pyrénées</region><settlement type="city">Toulouse</settlement></placeName></affiliation></author><author><name sortKey="Mohara, C" sort="Mohara, C" uniqKey="Mohara C" first="C" last="Mohara">C. Mohara</name><affiliation wicri:level="3"><nlm:affiliation>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex</wicri:regionArea><placeName><region type="region" nuts="2">Occitanie (région administrative)</region><region type="old region" nuts="2">Midi-Pyrénées</region><settlement type="city">Toulouse</settlement></placeName></affiliation></author><author><name sortKey="Brefel Courbon, C" sort="Brefel Courbon, C" uniqKey="Brefel Courbon C" first="C" last="Brefel Courbon">C. Brefel Courbon</name><affiliation wicri:level="3"><nlm:affiliation>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France; UMR 825 Inserm, imagerie cérébrale et handicaps neurologiques, université Toulouse III - Paul-Sabatier, CHU Purpan, pavillon Baudot, place du Dr-Joseph-Baylac, 31024 Toulouse cedex 3, France; Service de pharmacologie clinique, faculté de médecine, 37, allées Jules-Guesde, 31000 Toulouse, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Unité des mouvements anormaux, CHU Purpan, place du Dr-Joseph-Baylac, 31059 Toulouse cedex, France; UMR 825 Inserm, imagerie cérébrale et handicaps neurologiques, université Toulouse III - Paul-Sabatier, CHU Purpan, pavillon Baudot, place du Dr-Joseph-Baylac, 31024 Toulouse cedex 3, France; Service de pharmacologie clinique, faculté de médecine, 37, allées Jules-Guesde, 31000 Toulouse</wicri:regionArea><placeName><region type="region" nuts="2">Occitanie (région administrative)</region><region type="old region" nuts="2">Midi-Pyrénées</region><settlement type="city">Toulouse</settlement></placeName></affiliation></author></analytic><series><title level="j">Revue neurologique</title><idno type="ISSN">0035-3787</idno><imprint><date when="2014" type="published">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Aged</term><term>Aged, 80 and over</term><term>Combined Modality Therapy</term><term>France</term><term>Health Knowledge, Attitudes, Practice</term><term>Health Promotion (methods)</term><term>Humans</term><term>Middle Aged</term><term>Parkinson Disease (therapy)</term><term>Patient Education as Topic</term><term>Physical Therapy Modalities</term><term>Quality of Life</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>France</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Health Promotion</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Aged</term><term>Aged, 80 and over</term><term>Combined Modality Therapy</term><term>Health Knowledge, Attitudes, Practice</term><term>Humans</term><term>Middle Aged</term><term>Patient Education as Topic</term><term>Physical Therapy Modalities</term><term>Quality of Life</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>France</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">We developed a therapeutic educational program in Parkinson's disease (PD). The needs analysis for this program was performed through a survey involving 41 PD patients. This survey questionnaire was elaborated through the analysis of 395 patients' semi-directive interviews, performed in our specialized hospitalisation unit during explanation workshops between 2005 and 2007. We managed to design an educational program tailored to specificities of PD and according to the recommendations of the High Authority of Health in France (HAS). This program was based on individual sessions conducted by a nurse experienced in PD and trained in education. Collective workshops concerning specific themes such as physical therapy, communication, social supports, sleep disorders, stress management, therapies in PD could be proposed to volunteer patients and were performed by the nurse, a physiotherapist and a specialized practitioner. This program focused on skills structured in knowledge, expertise, and learning. It was intended for patients without any motor or cognitive severe impairment. We educated 231 patients between 2008 and 2012 individually and 113 in collective workshops. Patients had an interesting improvement in their self-esteem (6.2±1.4 before and 7.3±1.1 after one year of this educational program). This program has been validated by our regional medical agency and we performed a medico-economic study demonstrating a significant improvement in quality-of-life of educated patients without extra costs.</div></front></TEI><affiliations><list><country><li>France</li></country><region><li>Midi-Pyrénées</li><li>Occitanie (région administrative)</li></region><settlement><li>Toulouse</li></settlement></list><tree><country name="France"><region name="Occitanie (région administrative)"><name sortKey="Ory Magne, F" sort="Ory Magne, F" uniqKey="Ory Magne F" first="F" last="Ory Magne">F. Ory Magne</name></region><name sortKey="Arcari, C" sort="Arcari, C" uniqKey="Arcari C" first="C" last="Arcari">C. Arcari</name><name sortKey="Brefel Courbon, C" sort="Brefel Courbon, C" uniqKey="Brefel Courbon C" first="C" last="Brefel Courbon">C. Brefel Courbon</name><name sortKey="Canivet, C" sort="Canivet, C" uniqKey="Canivet C" first="C" last="Canivet">C. Canivet</name><name sortKey="Fabre, M H" sort="Fabre, M H" uniqKey="Fabre M" first="M H" last="Fabre">M H Fabre</name><name sortKey="Mohara, C" sort="Mohara, C" uniqKey="Mohara C" first="C" last="Mohara">C. Mohara</name><name sortKey="Sarrail, M" sort="Sarrail, M" uniqKey="Sarrail M" first="M" last="Sarrail">M. Sarrail</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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